My husband’s family has a reunion in a few weeks, and we will be traveling by plane to attend. Although I am excited for the opportunity to get away, see the sites, and enjoy good food, music and conversation, I can’t help by fee apprehensive.
Traveling with our son can be challenging, because he is not only hyperactive, he is g-tube fed, and unable to stand or sit without assistance. This means we must bring his wheelchair or his heavy duty stroller, in addition to his feeding supplies and medications.
There is also the issue of my inability to participate in “adult only” activities without a trustworthy babysitter. Not everyone is experienced in caring for someone with disabilities. And not everyone is willing to sacrifice their night-on-the-town for our sake.
Now that last part may sound a little selfish to some, but I created my blog to have an open, honest dialogue about the ins and outs – highs and lows of being a caregiver. And the truth is, being left out of events, adult or otherwise, can make one feel lonely, isolated and even resentful. Lord knows I’ve spent several days and nights feeling this way.
But rather than over-analyze and obsess over a possible scenario, I am going to focus on the bigger picture. Despite the circumstances, we are will be attending a 5 day family reunion, and I want myself and my family to enjoy every minute of it. And if we are blessed with an aunt, uncle or cousin that volunteers to take on the task of caring for my kiddo for a few hours, then I will be grateful.